Last year COB was approached by reaearchers from the University of Southampton to ask if they could use the postings on our Forums to help with their research. We were only too happy to help the researchers highlight the plight of those with chronic bladder illness. Here are the results of their study :-HOW WOMEN MANAGE RECURRENT URINARY TRACT INFECTIONS: AN ANALYSIS OF POSTINGS ON A POPULAR WEB FORUM Andrew Flower, Felicity L Bishop and George Lewith Complementary and Integrated Medicine Research Unit, University of Southampton, Aldermoor Close, Southampton SO16 5ST Background: Recurrent urinary tract infections (RUTIs) are commonly presented by women in primary care. In order to explore the poorly described experience of women with RUITs, a qualitative study was conducted that analysed data from a publically accessible internet-based self-help forum. Methods: Qualitative Description was used to analyse the text with an emphasis on using the naturalistic language of the information to portray their perceptions and experiences of RUTIs. Individual codes were identified inductively and grouped according to common ideas into related categories, before being incorporated into five main themes.Results: Women of diverse ages and geographical location contributed to the website. Themes were identified that vividly explored the atypical symptomatology of RUTIs, the serious impact it had on many aspects of women’s lives, different attitudes to treatment options such as antibiotics, the use of unorthodox approaches such as complementary and alternative medicines (CAM) and contrasting experiences of medical practitioners.Conclusion: A web-based analysis can vividly capture the views of a diverse population. RUTIs can have a disabling effect on women’s health, their intimate and social relationships, self-esteem and capacity for work. Further research is required to clarify the wider relevance of the qualitative themes identified, to identify key elements of good practice and to provide a more rigorous assessment of CAM interventions. The full report which was produced with information obtained from COB Forum users is available at http://www.biomedcentral.com/1471-2296/15/162
The Latest Research Information from the COB funded project undertaken by Newcastle University is now available. Either download a copy or call the COB Office on 0121 702 0820.
The subject for study as follows:-
Antimicrobial Peptides And Interstitial Cystitis
A summary of a laboratory investigation carried out with a grant from the Cystitis and Overactive Bladder Foundation (COB).
Mr Ased Ali, Dr Judith Hall and Professor Robert Pickard Institute for Cell and Molecular Biology, Newcastle University, Newcastle upon Tyne, UK.
Click here to download a copy of the completed report
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