Demographics

Number of completed surveys received: 736 (64%)

• Female respondents 95%

• Male respondents 5%

Age at first symptoms:

• Youngest 4 years

• Oldest 82 years

• Mean age at first symptoms 44 years

Duration of symptoms before diagnosis

• Shortest 1 month

• Longest 60 years

• Mean duration of symptoms before diagnosis 6 years

Risk Factors

• Number of respondents with another member of the family

• Diagnosed with interstitial cystitis 5%

• Respondents having undergone pelvic/abdominal surgery 62%

• Of which, surgery performed before onset of symptoms 66%